Jackson Saville

8-year-old Jackson Saville and his mom Stacy in their home in Virginia Beach, Va., on Tuesday, January 31, 2017. Jackson lives with Spinal Muscular Atrophy, a rare genetic condition that his sister, Morgan, died of when she was 3 years old in 2005. The FDA recently approved the first drug called Spinraza to treat it, and Jackson started receiving the medicine in March 2017.

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Google photo

You are commenting using your Google account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s