Stacy and Bill Saville anxiously wait in the waiting room while their son Jackson was getting his first injection of Spinraza, the first FDA approved medicine to treat a genetic disorder called spinal muscular atrophy at at ChildrenÕs Hospital of The KingÕs Daughter on Thursday, March, 2, 2017. The procedure was taking longer than expected and Stacy was getting nervous that they hadn’t heard any updates.