on Thursday Feb. 2, 2017 in Sweet Briar, Va. Photo by Lathan Goumas.

Megan Harris stretches the neck of her daughter Emmeline Harris, 8, at the family’s home on Thursday Feb. 2, 2017 in Sweet Briar, Va. Emmeline was born with a rare condition knows as CHARGE Syndrome that affects one in every 8,000-10,000 births according to the CHARGE Syndrome Foundation. CHARGE Syndrome can have a wide variety of symptoms that include vision impairment, hearing loss, heart defects and developmental delays.

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