Megan Harris stretches the neck of her daughter Emmeline Harris, 8, at the family’s home on Thursday Feb. 2, 2017 in Sweet Briar, Va. Emmeline was born with a rare condition knows as CHARGE Syndrome that affects one in every 8,000-10,000 births according to the CHARGE Syndrome Foundation. CHARGE Syndrome can have a wide variety of symptoms that include vision impairment, hearing loss, heart defects and developmental delays.